CIHR best practices for protecting privacy in health research : Canadian Institutes of Health Research best practices for protecting privacy in health research

The application of the community in Canada on the application of fair information in the Tables to a particular information principles to research involving research project should be determined in personal information, and to assist in the consultation with a legal advisor. [...] In the context of genetic research, the population • to not be re-contacted, but to authorize the should also be informed of the means taken to researchers to use the data only in certain minimize the risks. [...] In the area of ethics, one of the key challenges for the health research community is to protect the privacy of individuals and the confidentiality of personal information, at a time of great change in research. [...] Goals These Best Practices are intended to be innovative approaches to the challenge of protecting the privacy of individuals and the confidentiality of personal information in the context of health research. [...] REBs and researchers should also be sensitive to the context in which the database was created, such as a confidential relationship, as well as to the expectations of the groups or individuals at the time of the collection of the data with regard to its use, retention and disclosure.